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Ectodermal Dysplasia Society Information about the organization as well as the ED condition. Includes links, news articles and contact details. www.ectodermaldysplasia.org - cached |
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National Foundation for Ectodermal Dysplasia ED organization based in North America offering information/advice to individuals and supporting scientific research. Includes a newsletter, publications, FAQs and a list of services. www.nfed.org - cached |
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The CaF Directory Information about the ectodermal dysplasia disorders, the inheritance patterns and pre-natal diagnosing. Search in Category: Health: Conditions and Diseases: Rare Disorders Search in Category: Regional: Europe: United Kingdom: Society and Culture: Disability: Children www.cafamily.org.uk/Direct/e14.html - published: Oct 01 2005 - cached | |
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NORD: Ectodermal Dysplasias Offers synonyms, a general discussion and resources. Search in Category: Health: Conditions and Diseases: Rare Disorders www.rarediseases.org/search/rdbdetail_abstract.html?disname=Ectodermal%20Dysplasias - published: Nov 26 2008 - cached | |
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The Andy Fund Describes the health condition of a boy who was born with ectodermal dysplasia with immune deficiency caused by a mutation on the fourth part of the NEMO gene. www.andy.org.mx | |
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