Top: Health: Conditions and Diseases: Genetic Disorders: Cystic Fibrosis: Organizations  (24)


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Giga Bits (more) 30 12 20
fibrosis 17 Foundation 13
cystic fibrosis 11 8 01

Cystic Fibrosis Foundation
Seeking the means to cure and control cystic fibrosis and to improve the quality of
life for those with the disease. Providing information about the disease, treatment
options, clinical trials, research, and public policy.
Search in Category: Kids and Teens: Health: Conditions and Diseases: Cystic Fibrosis
www.cff.org - cached


Boomer Esiason Foundation
A resource for those affected by this disease. Includes details about the
organization, fund raising, events and a newsletter.
www.esiason.org - cached


Canadian Cystic Fibrosis Foundation
Support and resources. Located in Toronto, Ontario.
www.cysticfibrosis.ca - cached


Cystic Fibrosis Trust
National charity in the United Kingdom which funds research into the disease and
provides information and support for patients and families.
www.cftrust.org.uk - cached


Michigan Pulmonary Disease Community, Inc.
Provides information, support, and advocacy for children and adults with Cystic
Fibrosis. Includes adult support group, hospital CARE packages for children,
scholarships, newsletter, and list of Michigan CF centers.
www.mpdci.org - cached


New Jersey State Organization of Cystic Fibrosis
NJSOCF provides direct, hands on financial assistance to CF patients throughout the
state, counseling, referrals and educational materials to patients and their
families. Includes a questions and answers, news, services offered and coming
events.
www.njsocf.org - cached


Reaching Out Foundation
Provides information on the programs provided by this foundation, a personal story
of a person with CF who had a double lung transplant, general information on CF,
and how you can donate.
www.reachingoutfoundation.org - cached


Cochrane Cystic Fibrosis & Genetic Disorders Review Group
An international network of health care professionals, researchers and consumers
preparing, maintaining, and disseminating systematic reviews of randomised control
trials in the treatment of cystic fibrosis and other genetic disorders.
Search in Category: Reference: Education: Colleges and Universities: Europe: United Kingdom: England: University of Liverpool
www.liv.ac.uk/CFGD


Cystic Fibrosis Australia
Information about the organization and its aims and objectives, CF facts, events,
links and contact details.
www.cysticfibrosisaustralia.org.au - modified: Feb 01 2009 - cached


Cystic Fibrosis Services
A subsidiary of the Cystic Fibrosis Foundation in the United States, and a national
pharmacy that offers minimal-cost medications to individuals with the disease.
www.cfservicespharmacy.com - modified: 9 months ago - cached


Cystic Fibrosis Victoria Inc
Information about Cystic Fibrosis and the organisation, online chat room and
message board.
www.cfv.org.au - cached


Cystic Fibrosis Victoria Inc
Current information on Cystic Fibrosis, Cystic Fibrosis Victoria the
organisation, online chat room, message board, '65 Roses Magazine', SSL Secure
Online Shop and donations, events
www.cysticfibrosisvic.org.au - cached


Elizabeth Nash Foundation
Supports causes reflective of Elizabeth Nash's interests and values with a specific
emphasis on efforts that improve the lives of those affected by Cystic Fibrosis.
www.elizabethnashfoundation.org - cached


National Cystic Fibrosis Awareness Committee (NCFAC)
Helps to advance the public awareness of the genetic disease. Mission statement and
message board.
www.cfawareness.org - cached


Victoria Chapter, Canadian Cystic Fibrosis Foundation
The Victoria Chapter, one of 51 Chapters of the Canadian Cystic Fibrosis
Foundation, works to provide a brighter future for every person born with cystic
fibrosis. It assists in the quest to find a cure or control for the disease.
www.victoriacfchapter.ca - cached


Chicago Cystic Fibrosis Awareness Day
Provides information about the annual educational awareness day for people with CF
and their families living in the greater Chicago area. Includes links, clinical
trial and archives.
www.chicagocfawareness.org - cached


Concerned Friends of Cystic Fibrosis in Israel
Charitable organization that helps families in Israel who have a member suffering
from CF. Includes news, medical equipment needed, and donation information.
www.cfcfisrael.org - cached


Cystic Fibrosis Nurses: the International Specialist Group
Organization whose goals include setting and promoting high standards of nursing
practice in the treatment of persons with Cystic Fibrosis.
Search in Category: Health: Nursing: Organizations
www.cfnurses.net - cached


European Cystic Fibrosis Society
ECFS, aims to achieve the best possible treatment and the highest quality of life
for the patient with cystic fibrosis by the development and distribution of
knowledge in the field of cystic fibrosis
www.ecfsoc.org - cached


European Cystic Fibrosis Thematic Network
Creates a platform for scientists involved in fundamental CF research, for the more
than 160 genetic diagnostic laboratories, for CF associations of families, patients
and clinicians, legal experts and representatives of the industry.
www.cfnetwork.be - cached


Lungs for Life Foundation
Provides financial assistance to cystic fibrosis and lung transplant patients.
www.lungsforlife.org - cached


The Adult Cystic Fibrosis Committee of Quebec
Non-profit community organization whose primary mission is to improve quality of
life for persons with cystic fibrosis in Quebec. Information about CF for persons
who have the disease, as well as their families, spouses, and caregivers.
www.acfcq.qc.ca - cached


The Genentech Endowment for Cystic Fibrosis
An independent, non-profit endowment dedicated to expanding access to Pulmozyme®
(dornase alpha) therapy to qualifying un-insured and under-insured CF patients.
Find the eligibility and how to apply.
www.genentechcfendowment.org - published: Feb 01 2008 - cached




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